Barriers and Facilitators for Federated Health Data Networks: Lessons Learned from a Nordic-Baltic Experience




Babic, Aleksandar; Makhlysheva, Alexandra; Peltonen, Laura-Maria; Agafonov, Oleg; Chomutare, Taridzo

Andrikopoulou, Elisavet; Gallos, Parisis; Arvanitis, Theodoros N.; Austin, Rosalynn; Benis, Arriel; Cornet, Ronald; Chatzistergos, Panagiotis; Dejaco, Alexander; Dusseljee-Peute, Linda; Mohasseb, Alaa; Natsiavas, Pantelis; Nakkas, Haythem; Scott, Philip

Medical Informatics Europe Conference

PublisherIOS Press

2025

Studies in Health Technology and Informatics

Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025

327

268

272

978-1-64368-596-0

0926-9630

1879-8365

DOIhttps://doi.org/10.3233/SHTI250326

https://doi.org/10.3233/shti250326

https://research.utu.fi/converis/portal/detail/Publication/499070958



The era of artificial intelligence (AI) and big data presents significant opportunities for implementing federated health data networks across national borders. However, these opportunities are accompanied by substantial challenges. This study documents barriers and facilitators identified during the early phases of establishing the Nordic-Baltic Federated Health Data Network, prior to technical implementation. Utilizing a mixed-methods approach, we identified and prioritized key factors affecting consortium formation. Our findings reveal five key facilitator clusters that drive the project forward, including strong motivation, interdisciplinary collaboration, and regulatory alignment. Additionally, we identified six major barrier clusters, with security and privacy concerns and technical infrastructure challenges emerging as the most critical. These barriers impact both human collaboration and technical aspects, emphasizing the dual nature of network development. By providing a prioritized list of barriers and actionable strategies for addressing them, this study offers pre-implementation guidance for future consortia. These strategic insights can help teams better prepare for establishing cross-border federated health data networks.


Last updated on 2025-07-08 at 08:09