A4 Vertaisarvioitu artikkeli konferenssijulkaisussa
Barriers and Facilitators for Federated Health Data Networks: Lessons Learned from a Nordic-Baltic Experience
Tekijät: Babic, Aleksandar; Makhlysheva, Alexandra; Peltonen, Laura-Maria; Agafonov, Oleg; Chomutare, Taridzo
Toimittaja: Andrikopoulou, Elisavet; Gallos, Parisis; Arvanitis, Theodoros N.; Austin, Rosalynn; Benis, Arriel; Cornet, Ronald; Chatzistergos, Panagiotis; Dejaco, Alexander; Dusseljee-Peute, Linda; Mohasseb, Alaa; Natsiavas, Pantelis; Nakkas, Haythem; Scott, Philip
Konferenssin vakiintunut nimi: Medical Informatics Europe Conference
Kustantaja: IOS Press
Julkaisuvuosi: 2025
Journal: Studies in Health Technology and Informatics
Kokoomateoksen nimi: Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025
Vuosikerta: 327
Aloitussivu: 268
Lopetussivu: 272
eISBN: 978-1-64368-596-0
ISSN: 0926-9630
eISSN: 1879-8365
DOI: https://doi.org/10.3233/SHTI250326
Verkko-osoite: https://doi.org/10.3233/shti250326
Rinnakkaistallenteen osoite: https://research.utu.fi/converis/portal/detail/Publication/499070958
The era of artificial intelligence (AI) and big data presents significant opportunities for implementing federated health data networks across national borders. However, these opportunities are accompanied by substantial challenges. This study documents barriers and facilitators identified during the early phases of establishing the Nordic-Baltic Federated Health Data Network, prior to technical implementation. Utilizing a mixed-methods approach, we identified and prioritized key factors affecting consortium formation. Our findings reveal five key facilitator clusters that drive the project forward, including strong motivation, interdisciplinary collaboration, and regulatory alignment. Additionally, we identified six major barrier clusters, with security and privacy concerns and technical infrastructure challenges emerging as the most critical. These barriers impact both human collaboration and technical aspects, emphasizing the dual nature of network development. By providing a prioritized list of barriers and actionable strategies for addressing them, this study offers pre-implementation guidance for future consortia. These strategic insights can help teams better prepare for establishing cross-border federated health data networks.
Ladattava julkaisu This is an electronic reprint of the original article. |