A4 Refereed article in a conference publication
Barriers and Facilitators for Federated Health Data Networks: Lessons Learned from a Nordic-Baltic Experience
Authors: Babic, Aleksandar; Makhlysheva, Alexandra; Peltonen, Laura-Maria; Agafonov, Oleg; Chomutare, Taridzo
Editors: Andrikopoulou, Elisavet; Gallos, Parisis; Arvanitis, Theodoros N.; Austin, Rosalynn; Benis, Arriel; Cornet, Ronald; Chatzistergos, Panagiotis; Dejaco, Alexander; Dusseljee-Peute, Linda; Mohasseb, Alaa; Natsiavas, Pantelis; Nakkas, Haythem; Scott, Philip
Conference name: Medical Informatics Europe Conference
Publisher: IOS Press
Publication year: 2025
Journal: Studies in Health Technology and Informatics
Book title : Intelligent Health Systems – From Technology to Data and Knowledge: Proceedings of MIE 2025
Volume: 327
First page : 268
Last page: 272
eISBN: 978-1-64368-596-0
ISSN: 0926-9630
eISSN: 1879-8365
DOI: https://doi.org/10.3233/SHTI250326
Web address : https://doi.org/10.3233/shti250326
Self-archived copy’s web address: https://research.utu.fi/converis/portal/detail/Publication/499070958
The era of artificial intelligence (AI) and big data presents significant opportunities for implementing federated health data networks across national borders. However, these opportunities are accompanied by substantial challenges. This study documents barriers and facilitators identified during the early phases of establishing the Nordic-Baltic Federated Health Data Network, prior to technical implementation. Utilizing a mixed-methods approach, we identified and prioritized key factors affecting consortium formation. Our findings reveal five key facilitator clusters that drive the project forward, including strong motivation, interdisciplinary collaboration, and regulatory alignment. Additionally, we identified six major barrier clusters, with security and privacy concerns and technical infrastructure challenges emerging as the most critical. These barriers impact both human collaboration and technical aspects, emphasizing the dual nature of network development. By providing a prioritized list of barriers and actionable strategies for addressing them, this study offers pre-implementation guidance for future consortia. These strategic insights can help teams better prepare for establishing cross-border federated health data networks.
Downloadable publication This is an electronic reprint of the original article. |