Tom Southerington

- Project Researcher,
- Doctoral Researcher
Laws (Faculty of Law)

tomsou@utu.fi

: https://orcid.org/0000-0002-0879-5042

Estimating the use of biological samples in Finnish biobanks and hospital collections (2025)
- European Journal of Human Genetics
Tupasela, Aaro; Southerington, Tom; Mäkelä, Johanna; Kallio, Lila; Perälä, Merja; Kosma, Veli-Matti; Mannermaa, Arto; Jokela, Tiina; Pitkänen, Kimmo; Kontro, Mika; Vesterinen, Tiina; Punkka, Eero; Knopp, Theresa; Ruddock, Minna; Serpi, Raisa; Moilanen, Anne-Mari; Viiri, Leena; Siltanen, Sanna; Makkonen, Enni; Ingalsuo, Päivi
Comparative Review of National Regulatory Frameworks in the Context of Secondary Use of Data for Research Across Europe (2024) The Discourse of Biorights: European Perspectives Tzortzatou-Nanopoulou, Olga; Ziaka, Alexandra; Barbosa, Carla; Chassang, Gauthier; Duardo-Sánchez, Aliuska; Elunurm, Silja; Dalebø Gjerdevik, Christine; Halouzka, Radek; Hartlev, Mette; Holst, Ragnhild Angell; Krekora-Zajac, Dorota; Kuráň, Jan; Lalova—Spinks, Teodora; Lavitrano, Maria Luisa; Macilotti, Matteo; Makri, Marina; Mežinska, Signe; Molnár-Gábor, Fruzsina; Rebers, Susanne; Reichel, Jane; Slokenberga, Santa; Southerington, Tom; Falzon, Ruth Vella
Finnish perspective on using synthetic health data to protect privacy: the PRIVASA project (2024)
- Applied Computing and Intelligence
Pitkämäki, Tinja; Pahikkala, Tapio; Montoya Perez, Ileana; Movahedi, Parisa; Nieminen, Valtteri; Southerington, Tom; Vaiste, Juho; Jafaritadi, Mojtaba; Khan, Muhammad Irfan; Kontio, Elina; Ranttila, Pertti; Pajula, Juha; Pölönen, Harri; Degerli, Aysen; Plomp, Johan; Airola, Antti
The role of complement factor I rare genetic variants in age related macular degeneration in Finland (2024)
- Human Molecular Genetics
Andreadi, Anneliza; Hallam, Thomas M; Brocklebank, Vicky; Sharp, Scott J; Walsh, Patrick R; Southerington, Tom; Hautalahti, Marco; Steel, David H; Lotery, Andrew J; Harris, Claire L; Marchbank, Kevin J; Kavanagh, David; Jones, Amy V.
The European health data space: Too big to succeed? (2023)
- Health Policy
Marelli Luca, Stevens Marthe, Sharon Tamar, Van Hoyweghen Ine, Boeckhout Martin, Colussi Ilaria, Degelsegger-Márquez Alexander, El-Sayed Seliem, Hoeyer Klaus, van Kessel Robin, Zając Dorota Krekora, Matei Mihaela, Roda Sara, Prainsack Barbara, Schlünder Irene, Shabani Mahsa, Southerington Tom
An assessment of prevalence of Type 1 CFI rare variants in European AMD, and why lack of broader genetic data hinders development of new treatments and healthcare access (2022)
- PLoS ONE
Jones Amy V., Curtiss Darin, Harris Claire, Southerington Tom, Hautalahti Marco, Wihuri Pauli., Mäkelä Johanna, Kallionpää Roosa E., Makkonen Enni, Knopp Theresa, Mannermaa Arto, Mäkinen Erna, Moilanen Anne-Mari, Tezel Tongalp H., Waheed Nadia K., Arora Rashi, Crawford Courtney, Creuzot-Garcher Catherine, Csaky Karl, Devin Francois, Eichenbaum David, Ferrone Philip, Figueroa Marta, Flaxel Christina, Ghorayeb Ghassan, Gilmour David, Grisanti Salvatore, Guymer Robyn, Hall Edward, Heier Jeff, Ho Allen, Hoyng Carol, Issa Peter Charbel, Ivanova Tsveta, Kaluzny Bartlomiej, Khanani Ashad, Leveziel Nicolas, Maturi Raj, McKibbin Martin, Nielsen Jared, Schneiderman Todd, Spitzer Martin, Steele David, Suan Eric, Voleti Vinod, Wirthlin Robert
Access to Biomedical Research Material and the Right to Data Protection in Finland (2021) GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe Southerington Tom
Biobanking Across Europe Post-GDPR: A Deliberately Fragmented Landscape (2021) GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe Tzortzatou Olga, Slokenberga Santa, Reichel Jane, da Costa Andrade Andreia, Barbosa Carla, Bekaert Sofie, van Veen Evert-Ben, Romeo-Casabona Carlos M., Cathaoir Katharina Ó., Chassang Gauthier, Debucquoy Annelies, Derèze Jean-Jacques, Dollé Laurent, Eaker Fält Sonja, Halouzka Radek, Hartlev Mette, Hisbergues Michael, Hoppe Nils, Huys Isabelle, Kindt Els, Befring Anne Kjersti, Kozera Lukasz, Krekora-Zajac Dorota, Lalova Teodora, Mayrhofer Michaela, Negrouk Anastassia, Pawlikowski Jakub, Penasa Simone, Pormeister Kärt, Rial-Sebbag Emmanuelle, Siapka Anastasia, Southerington Tom, Stenbeck Magnus, Šutalo Maja, Tomasi Marta, Valcke Peggy, Vella Falzon Ruth
Comment on “Salokannel et al., Legacy samples in Finnish biobanks: social and legal issues related to the transfer of old sample collections into biobanks” (2020)
- Human Genetics
Sandra Liede, Sirpa Soini, Tom Southerington
GA4GH GDPR Brief: The Finnish Secondary Use Act 2019 (May 2020 Bonus Brief) (2020) Tom Southerington
Lääkehoitotietojen toisiokäyttö ja tietoaltaiden hyödyntäminen rekisteritutkimuksissa (2020)
- Lääkärilehti
Juha Laine, Tom Southerington, Mirkka Koivusalo, Heli Lehtonen, Marco Hautalahti
Biopankkilainsäädännön muuttuva kenttä: uhkat ja mahdollisuudet (2019)
- Duodecim
Tom Southerington, Seppo Vainio, Anne Pitkäranta
Data Portability in Health Research and Biobanking: Legal Benchmarks for Appropriate Implementation (2018)
- European Data Protection Law Review
Gauthier Chassang, Tom Southerington, Olga Tzortzatou, Martin Boeckhout, Santa Slokenberga
Impossibility of Performance and Other Excuses in International Trade (2001) Tom Southerington