Tom Southerington
tomsou@utu.fi ORCID identifier: https://orcid.org/0000-0002-0879-5042 |
Publications
- Estimating the use of biological samples in Finnish biobanks and hospital collections (2025)
- European Journal of Human Genetics
(A1 Refereed original research article in a scientific journal) - Comparative Review of National Regulatory Frameworks in the Context of Secondary Use of Data for Research Across Europe (2024) The Discourse of Biorights: European Perspectives Tzortzatou-Nanopoulou, Olga; Ziaka, Alexandra; Barbosa, Carla; Chassang, Gauthier; Duardo-Sánchez, Aliuska; Elunurm, Silja; Dalebø Gjerdevik, Christine; Halouzka, Radek; Hartlev, Mette; Holst, Ragnhild Angell; Krekora-Zajac, Dorota; Kuráň, Jan; Lalova—Spinks, Teodora; Lavitrano, Maria Luisa; Macilotti, Matteo; Makri, Marina; Mežinska, Signe; Molnár-Gábor, Fruzsina; Rebers, Susanne; Reichel, Jane; Slokenberga, Santa; Southerington, Tom; Falzon, Ruth Vella
(A3 Refereed book chapter or chapter in a compilation book) - Finnish perspective on using synthetic health data to protect privacy: the PRIVASA project (2024)
- Applied Computing and Intelligence
(A1 Refereed original research article in a scientific journal) - The role of complement factor I rare genetic variants in age related macular degeneration in Finland (2024)
- Human Molecular Genetics
(A1 Refereed original research article in a scientific journal) - The European health data space: Too big to succeed? (2023)
- Health Policy
(A1 Refereed original research article in a scientific journal) - An assessment of prevalence of Type 1 CFI rare variants in European AMD, and why lack of broader genetic data hinders development of new treatments and healthcare access (2022)
- PLoS ONE
(A1 Refereed original research article in a scientific journal) - Access to Biomedical Research Material and the Right to Data Protection in Finland (2021) GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe Southerington Tom
(A3 Refereed book chapter or chapter in a compilation book) - Biobanking Across Europe Post-GDPR: A Deliberately Fragmented Landscape (2021) GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe Tzortzatou Olga, Slokenberga Santa, Reichel Jane, da Costa Andrade Andreia, Barbosa Carla, Bekaert Sofie, van Veen Evert-Ben, Romeo-Casabona Carlos M., Cathaoir Katharina Ó., Chassang Gauthier, Debucquoy Annelies, Derèze Jean-Jacques, Dollé Laurent, Eaker Fält Sonja, Halouzka Radek, Hartlev Mette, Hisbergues Michael, Hoppe Nils, Huys Isabelle, Kindt Els, Befring Anne Kjersti, Kozera Lukasz, Krekora-Zajac Dorota, Lalova Teodora, Mayrhofer Michaela, Negrouk Anastassia, Pawlikowski Jakub, Penasa Simone, Pormeister Kärt, Rial-Sebbag Emmanuelle, Siapka Anastasia, Southerington Tom, Stenbeck Magnus, Šutalo Maja, Tomasi Marta, Valcke Peggy, Vella Falzon Ruth
(A3 Refereed book chapter or chapter in a compilation book) - Comment on “Salokannel et al., Legacy samples in Finnish biobanks: social and legal issues related to the transfer of old sample collections into biobanks” (2020)
- Human Genetics
(B1 Non-refereed article in a scientific journal) - GA4GH GDPR Brief: The Finnish Secondary Use Act 2019 (May 2020 Bonus Brief) (2020) Tom Southerington
(E1 Popularised article) - Lääkehoitotietojen toisiokäyttö ja tietoaltaiden hyödyntäminen rekisteritutkimuksissa (2020)
- Lääkärilehti
(D1 Article in a professional journal) - Biopankkilainsäädännön muuttuva kenttä: uhkat ja mahdollisuudet (2019)
- Duodecim
(D1 Article in a professional journal) - Data Portability in Health Research and Biobanking: Legal Benchmarks for Appropriate Implementation (2018)
- European Data Protection Law Review
(A1 Refereed original research article in a scientific journal) - Impossibility of Performance and Other Excuses in International Trade (2001) Tom Southerington
(G2 Master’s thesis, polytechnic Master’s thesis)
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