Tom Southerington
tomsou@utu.fi ORCID identifier: https://orcid.org/0000-0002-0879-5042 |
Publications
- A comprehensive European Colorectal Cancer Cohort dataset (2026)
- Scientific Data
(A1 Refereed data article in a scientific journal) - Genetic, lifestyle and environmental influences on health: a Finnish biobank recall study protocol (BioRecall) (2026)
- BMJ Open
(A1 Refereed original research article in a scientific journal) - Two-faced Janus? Consent to participate in research and consent to data processing in the EHDS era: a comparative analysis of requirements and standards in eight European countries (2026)
- Journal of Law and the Biosciences
(A1 Refereed original research article in a scientific journal) - Estimating the use of biological samples in Finnish biobanks and hospital collections (2025) Tupasela, Aaro; Southerington, Tom; Mäkelä, Johanna; Kallio, Lila; Perälä, Merja; Kosma, Veli-Matti; Mannermaa, Arto; Jokela, Tiina; Pitkänen, Kimmo; Kontro, Mika; Vesterinen, Tiina; Punkka, Eero; Knopp, Theresa; Ruddock, Minna; Serpi, Raisa; Moilanen, Anne-Mari; Viiri, Leena; Siltanen, Sanna; Makkonen, Enni; Ingalsuo, Päivi
(A1 Refereed original research article in a scientific journal) - Comparative Review of National Regulatory Frameworks in the Context of Secondary Use of Data for Research Across Europe (2024) The Discourse of Biorights: European Perspectives Tzortzatou-Nanopoulou, Olga; Ziaka, Alexandra; Barbosa, Carla; Chassang, Gauthier; Duardo-Sánchez, Aliuska; Elunurm, Silja; Dalebø Gjerdevik, Christine; Halouzka, Radek; Hartlev, Mette; Holst, Ragnhild Angell; Krekora-Zajac, Dorota; Kuráň, Jan; Lalova—Spinks, Teodora; Lavitrano, Maria Luisa; Macilotti, Matteo; Makri, Marina; Mežinska, Signe; Molnár-Gábor, Fruzsina; Rebers, Susanne; Reichel, Jane; Slokenberga, Santa; Southerington, Tom; Falzon, Ruth Vella
(A3 Refereed book chapter or chapter in a compilation book) - Finnish perspective on using synthetic health data to protect privacy: the PRIVASA project (2024)
- Applied Computing and Intelligence
(A1 Refereed original research article in a scientific journal) - The role of complement factor I rare genetic variants in age related macular degeneration in Finland (2024)
- Human Molecular Genetics
(A1 Refereed original research article in a scientific journal) - The European health data space: Too big to succeed? (2023)
- Health Policy
(A1 Refereed original research article in a scientific journal) - An assessment of prevalence of Type 1 CFI rare variants in European AMD, and why lack of broader genetic data hinders development of new treatments and healthcare access (2022)
- PLoS ONE
(A1 Refereed original research article in a scientific journal) - Access to Biomedical Research Material and the Right to Data Protection in Finland (2021) GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe Southerington Tom
(A3 Refereed book chapter or chapter in a compilation book)



