A2 Refereed review article in a scientific journal
Family members' participation in palliative inpatient care: An integrative review
Authors: Saarinen Johanna, Mishina Kaisa, Soikkeli-Jalonen Anu, Haavisto Elina
Publisher: WILEY
Publication year: 2023
Journal: Scandinavian Journal of Caring Sciences
Journal name in source: SCANDINAVIAN JOURNAL OF CARING SCIENCES
Journal acronym: SCAND J CARING SCI
Volume: 37
Issue: 4
First page : 897
Last page: 908
Number of pages: 12
ISSN: 0283-9318
eISSN: 1471-6712
DOI: https://doi.org/10.1111/scs.13062
Web address : https://www.doi.org/10.1111/scs.13062
Self-archived copy’s web address: https://research.utu.fi/converis/portal/detail/Publication/68688915
Aim: To analyse how family members participate in hospital inpatient palliative care, and how their participation could be supported.
Methods: This review followed a methodology outlined in the literature for integrative reviews. A literature search supplemented by a manual search was conducted on four electronic databases during 2020 to 2021: PubMed, CINAHL, PsycINFO, and Cochrane Library. A critical appraisal of the included studies was performed, and data were analysed using inductive content analysis.
Results: The literature search resulted in 4990 articles, of which 14 articles were included in this review. Four main categories were identified concerning the participation of family members in hospital inpatient palliative care: participation in the physical care, provision of emotional support, promoting good patient care, and support provided by healthcare professionals for family members' participation. Family members' participation can be supported in different ways, including active communication and adequate information.
Conclusion: Family members' participation in hospital inpatient palliative care has been an important part of palliative care in hospital settings. Family members should be offered the opportunity to participate in patient care, and their presence in the hospital should be accommodated. Research on the topic is still scarce, and future research is needed from different perspectives, including intervention research.
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