A1 Refereed original research article in a scientific journal

Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences




AuthorsMicai Martina, Ciaramella Antonio, Salvitti Tommaso, Fulceri Francesca, Fatta Laura Maria, Poustka Luise, Diehm Robert, Iskrov Georgi, Stefanov Rumen, Guillon Quentin, Rogé Bernadette, Staines Anthony, Sweeney Mary Rose, Boilson Andrew Martin, Leósdóttir Thora, Saemundsen Evald, Moilanen Irma, Ebeling Hanna, Yliherva Anneli, Gissler Mika, Parviainen Tarja, Tani Pekka, Kawa Rafal, Vicente Astrid, Rasga Célia, Budişteanu Magdalena, Dale Ian, Povey Carol, Flores Noelia, Jenaro Cristina, Monroy Maria Luisa, Primo Patricia García, Charman Tony, Cramer Susanne, Warberg Christine Kloster, Canal-Bedia Ricardo, Posada Manuel, Scattoni Maria Luisa, Schendel Diana

PublisherSPRINGER/PLENUM PUBLISHERS

Publication year2022

JournalJournal of Autism and Developmental Disorders

Journal name in sourceJOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS

Journal acronymJ AUTISM DEV DISORD

Volume52

Issue4

First page 1623

Last page1639

Number of pages17

ISSN0162-3257

eISSN1573-3432

DOIhttps://doi.org/10.1007/s10803-021-05038-0

Web address https://link.springer.com/article/10.1007/s10803-021-05038-0

Self-archived copy’s web addresshttps://research.utu.fi/converis/portal/detail/Publication/58927998


Abstract
The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults.

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