A1 Vertaisarvioitu alkuperäisartikkeli tieteellisessä lehdessä
Consumer Engagement in Chronic Conditions Research: An Integrated Framework Informed by Recognition Theory
Tekijät: Zhou, Mingming; Parkinson, Anne; Watts, Leanne; Veitch, Julie; Suominen, Hanna; Desborough, Jane
Kustantaja: Wiley
Julkaisuvuosi: 2026
Lehti: Health Expectations
Artikkelin numero: e70615
Vuosikerta: 29
Numero: 1
ISSN: 1369-6513
eISSN: 1369-7625
DOI: https://doi.org/10.1111/hex.70615
Julkaisun avoimuus kirjaamishetkellä: Avoimesti saatavilla
Julkaisukanavan avoimuus : Osittain avoin julkaisukanava
Verkko-osoite: https://doi.org/10.1111/hex.70615
Rinnakkaistallenteen osoite: https://research.utu.fi/converis/portal/detail/Publication/515719507
Rinnakkaistallenteen lisenssi: CC BY
Rinnakkaistallennetun julkaisun versio: Kustantajan versio
Background
Consumer engagement ensures that health research reflects lived experiences and generates outcomes relevant to those most affected. However, frameworks guiding engagement in research about chronic conditions remain limited and often lack theoretical grounding.
ObjectiveTo develop an integrated, evidence-based framework to support consumer engagement in research about chronic conditions.
MethodsWe integrated findings from (1) a scoping review synthesising evidence-based resources supporting consumer engagement in research about chronic conditions (Resource Framework) and (2) a co-designed framework for recognising consumers' contributions to research within the Australian context (Recognition Framework). Our integration deployed the relational, structural, and symbolic domains of Honneth's recognition theory as an analytical lens and used joint displays to develop a comprehensive framework.
ResultsThe framework demonstrates how relational, structural, and symbolic dimensions of recognition collectively support ethical and sustainable consumer engagement. Relational recognition (e.g., mutual learning, ongoing communication) strengthens interpersonal trust and shared decision-making; structural recognition (e.g., governance policies, remuneration, reimbursement) embeds engagement within institutional systems; and symbolic recognition (e.g., authorship, formal acknowledgement) legitimises consumers' expertise within research cultures. Together, these elements provide a comprehensive foundation for supporting meaningful engagement across research practices.
ConclusionThis integrated recognition theory-informed framework offers an evidence-based tool to inform the design and implementation of consumer engagement in research about chronic conditions. By positioning recognition for consumers' contribution as an ethical, structural, and symbolic principle, it offers a transferable framework to strengthen participatory practice and advance equity in research. While developed for chronic conditions research, the framework is likely transferable with contextual tailoring to other settings.
Ladattava julkaisu This is an electronic reprint of the original article. |
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The authors received no specific funding for this work.
Open access publishing facilitated by Australian National University, as part of the Wiley ‐ Australian National University agreement via the Council of Australasian University Librarians.