A1 Refereed original research article in a scientific journal

Third-party data leaks on websites of medical condition support associations




AuthorsRauti, Sampsa; Carlsson, Robin; Puhtila, Panu; Heino, Timi; Mäkilä, Tuomas; Leppänen, Ville

PublisherOAE Publishing Inc.

Publication year2025

Journal: Journal of Surveillance, Security and Safety

Volume6

First page 1

Last page16

eISSN2694-1015

DOIhttps://doi.org/10.20517/jsss.2024.15

Publication's open availability at the time of reportingOpen Access

Publication channel's open availability Open Access publication channel

Web address https://doi.org/10.20517/jsss.2024.15

Self-archived copy’s web addresshttps://research.utu.fi/converis/portal/detail/Publication/508540384

Self-archived copy's licenceCC BY

Self-archived copy's versionPublisher`s PDF


Abstract

The internet has become a primary source of health information for many people. For example, the websites of many medical condition support associations, meant for people suffering from various medical conditions, contain information on different medical conditions, treatments, and general health advice. However, accessing such information can be a serious privacy threat for the end user. In this article, we study the privacy of the websites of 18 Finnish medical condition support associations. The websites were analyzed to find leakages of sensitive personal data to third parties. Our investigation concludes that 88.9% of the websites leaked potentially sensitive personal data to third parties, usually private corporations offering web analytics tools such as Google Analytics. Furthermore, we discovered that users are not adequately informed about these data processing activities. We suggest several measures to alleviate third-party data leaks on websites handling sensitive personal data.


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Funding information in the publication
This research has been funded by the Academy of Finland project 327397, IDA – Intimacy in Data-Driven Culture.


Last updated on 26/01/2026 02:10:03 PM