A1 Refereed original research article in a scientific journal
Estimating the use of biological samples in Finnish biobanks and hospital collections
Authors: Tupasela, Aaro; Southerington, Tom; Mäkelä, Johanna; Kallio, Lila; Perälä, Merja; Kosma, Veli-Matti; Mannermaa, Arto; Jokela, Tiina; Pitkänen, Kimmo; Kontro, Mika; Vesterinen, Tiina; Punkka, Eero; Knopp, Theresa; Ruddock, Minna; Serpi, Raisa; Moilanen, Anne-Mari; Viiri, Leena; Siltanen, Sanna; Makkonen, Enni; Ingalsuo, Päivi
Publisher: Springer Science and Business Media LLC
Publishing place: LONDON
Publication year: 2025
Journal: European Journal of Human Genetics
Journal acronym: EUR J HUM GENET
Number of pages: 6
ISSN: 1018-4813
eISSN: 1476-5438
DOI: https://doi.org/10.1038/s41431-025-01906-w
Web address : https://www.nature.com/articles/s41431-025-01906-w
Self-archived copy’s web address: https://research.utu.fi/converis/portal/detail/Publication/499250885
Finland has steadily developed its biobanking infrastructures since the early 2010s. This article presents a systematic overview of the number of biological samples that have been provided for research since 2013 when the Finnish Biobank Act came into force. Using data from individual biobanks and from permits issued by Fimea (formerly Valvira), we present the most up-to-date and complete account of sample use at a national level. Between 2014 and 2023 a total of 1,474,881 samples were provided through 998 sample requests. A better understanding of the use of biological samples at the national level can help highlight the important impact biobanking has as an infrastructure for supporting research. We argue that developing standards can help in developing national biobanking strategies and identify areas where biobanking can be further developed. We also conclude that the ability to combine tissue samples and health data flexibly and efficiently is essential and needs to be secured also within the context of the European Health Data Space (EHDS).
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Funding information in the publication:
The research conducted by Aaro Tupasela has been funded by the Finnish Strategic Research Council under the DataLit project. FinBB and associated biobanks have contributed through provision of data on sample usage. Open Access funding provided by University of Helsinki (including Helsinki University Central Hospital).
