Strabismic Adults' Expectations of Psychosocial Support From Healthcare Professionals–A Qualitative Descriptive Study
: Mason, Anna; Joronen, Katja; Lindberg, Laura; Kajander, Marika; Fagerholm, Nina; Rantanen, Anja
Publisher: Wiley
: HOBOKEN
: 2025
: Health science reports
: Health Science Reports
: HEALTH SCI REP-US
: e70698
: 8
: 5
: 10
: 2398-8835
: 2398-8835
DOI: https://doi.org/10.1002/hsr2.70698
: https://doi.org/10.1002/hsr2.70698
: https://research.utu.fi/converis/portal/detail/Publication/498507067
Background and aims: Strabismus, an eye misalignment, impacts the functional and psychosocial health-related quality of life in adult patients. Corrective surgery generally improves adults' health-related quality of life. Previous research reports that strabismic adults with a psychosocial influence of the condition may benefit from preoperative psychosocial support, although what such support should consist of is unclear. Therefore, this study aimed to describe strabismic adults' expectations of psychosocial support from healthcare professionals.
Methods: The study has a qualitative descriptive design. It included 12 semi-structured interviews with purposefully recruited patients who had experienced the psychosocial influences of strabismus. The data were analyzed by inductive content analysis.
Results: Strabismic adult patients described their expectations for psychosocial support, consisting of education about strabismus, genuine encounters with strabismus experts, accessible support, and available peer support. The participants explained that strabismus specialists should provide tailored education for patients, the public, and other healthcare professionals. They shared that strabismus professionals should ask about patients' psychosocial well-being-that by intently listening, openly discussing, and validating patients' experiences, they could support their well-being. Psychological care provided by nurses and psychologists should be easily accessible, supportive, and timely for children and adolescents. Participants also expected professionals to guide them to available peer support.
Conclusion: Strabismic adult patients dealing with the condition's psychosocial burden expect psychosocial support from strabismus experts. This study's results can be used to improve psychosocial care in clinical strabismus services.
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The authors acknowledge the healthcare staff who enabled the study by recruiting participants and thank the patients for sharing their expectations. The first author received 4 research months from the HUS Helsinki University Hospital Nursing Research Center (HUS/676/2021) and a 500(sic) grant from the Finnish Nurses Association to aid time off work during data collection and analysis. Open access publishing facilitated by Tampereen yliopisto ja Tampereen ammattikorkeakoulu, as part of the Wiley - FinELib agreement.