Multiple sclerosis registries in Europe - An updated mapping survey

: A. Glaser, A. Stahmann, T. Meissner, P. Flachenecker, D. Horáková, P. Zaratin, G. Brichetto, M. Pugliatti, O. Rienhoff, S. Vukusic, A.C. de Giacomoni, M.A. Battaglia, W. Brola, H. Butzkueven, R. Casey, J. Drulovic, K. Eichstädt, K. Hellwig, P. Iaffaldano, E. Ioannidou, J. Kuhle, K. Lycke, M. Magyari, T. Malbaša, R. Middleton, K.M. Myhr, K. Notas, A. Orologas, S. Otero-Romero, T. Pekmezovic, J. Sastre-Garriga, P. Seeldrayers, M. Soilu-Hänninen, L. Stawiarz, M. Trojano, T. Ziemssen, J. Hillert, C. Thalheim

Publisher: ELSEVIER SCI LTD

: 2019

: Multiple Sclerosis and Related Disorders

: MULTIPLE SCLEROSIS AND RELATED DISORDERS

: MULT SCLER RELAT DIS

: 27

: January 2019

: 171

: 178

: 8

: 2211-0348

DOI: https://doi.org/10.1016/j.msard.2018.09.032

Highlights

Nineteen questionnaires from European MS registries were analysed.
Aim and focus as well as number of patients and inclusion criteria vary considerably.
Most of the MS registries collect data within common general categories.
There are more pronounced differences regarding specific subcategories.