B1 Non-refereed article in a scientific journal

Multiple sclerosis registries in Europe - An updated mapping survey




AuthorsA. Glaser, A. Stahmann, T. Meissner, P. Flachenecker, D. Horáková, P. Zaratin, G. Brichetto, M. Pugliatti, O. Rienhoff, S. Vukusic, A.C. de Giacomoni, M.A. Battaglia, W. Brola, H. Butzkueven, R. Casey, J. Drulovic, K. Eichstädt, K. Hellwig, P. Iaffaldano, E. Ioannidou, J. Kuhle, K. Lycke, M. Magyari, T. Malbaša, R. Middleton, K.M. Myhr, K. Notas, A. Orologas, S. Otero-Romero, T. Pekmezovic, J. Sastre-Garriga, P. Seeldrayers, M. Soilu-Hänninen, L. Stawiarz, M. Trojano, T. Ziemssen, J. Hillert, C. Thalheim

PublisherELSEVIER SCI LTD

Publication year2019

JournalMultiple Sclerosis and Related Disorders

Journal name in sourceMULTIPLE SCLEROSIS AND RELATED DISORDERS

Journal acronymMULT SCLER RELAT DIS

Volume27

IssueJanuary 2019

First page 171

Last page178

Number of pages8

ISSN2211-0348

DOIhttps://doi.org/10.1016/j.msard.2018.09.032


Abstract

Highlights

  • Nineteen questionnaires from European MS registries were analysed.
  • Aim and focus as well as number of patients and inclusion criteria vary considerably.
  • Most of the MS registries collect data within common general categories.
  • There are more pronounced differences regarding specific subcategories.



Last updated on 2024-26-11 at 16:07