A1 Refereed original research article in a scientific journal

Children with palliative care needs - the landscape of the nordic countries




AuthorsWinger Anette, Holmen Heidi, Birgisdóttir Dröfn, Lykke Camilla, Lövgren Malin, Neergaard Mette Asbjoern, Grönroos Marika, Kero Johanna, Kristinsdóttir Oddný, Pétursdóttir Ásta Bjarney, Castor Charlotte

PublisherBioMed Central

Publication year2024

JournalBMC Palliative Care

Journal name in sourceBMC palliative care

Journal acronymBMC Palliat Care

Article number118

Volume23

Issue1

ISSN1472-684X

eISSN1472-684X

DOIhttps://doi.org/10.1186/s12904-024-01447-x(external)

Web address https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-024-01447-x(external)

Self-archived copy’s web addresshttps://research.utu.fi/converis/portal/detail/Publication/393514259(external)


Abstract

Background: To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries' (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research.

Methods: The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC.

Results: In total, the Nordic child population comprises around six million children (0-19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done.

Conclusion: This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context.


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Funding information in the publication
Funding received from Oslo Metropolitan University (grant nr. 23/01403).


Last updated on 2024-28-11 at 12:06