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The International Collaboration for Autism Registry Epidemiology (iCARE) – Multinational Registry-Based Investigations of Autism Risk Factors and Trends




AlaotsikkoMultinational Registry-Based Investigations of Autism Risk Factors and Trends

TekijätSchendel DE, Bresnahan M, Carter KW, Francis RW, Gissler M, Gronborg TK, Gross R, Gunnes N, Hornig M, Hultman CM, Langridge A, Lauritsen MB, Leonard H, Parner ET, Reichenberg A, Sandin S, Sourander A, Stoltenberg C, Suominen A, Suren P, Susser E

KustantajaSPRINGER/PLENUM PUBLISHERS

Julkaisuvuosi2013

JournalJournal of Autism and Developmental Disorders

Tietokannassa oleva lehden nimiJOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS

Lehden akronyymiJ AUTISM DEV DISORD

Numero sarjassa11

Vuosikerta43

Numero11

Aloitussivu2650

Lopetussivu2663

Sivujen määrä14

ISSN0162-3257

DOIhttps://doi.org/10.1007/s10803-013-1815-x


Tiivistelmä
The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.

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Last updated on 2024-26-11 at 11:33