A1 Refereed original research article in a scientific journal
The International Collaboration for Autism Registry Epidemiology (iCARE) – Multinational Registry-Based Investigations of Autism Risk Factors and Trends
Subtitle: Multinational Registry-Based Investigations of Autism Risk Factors and Trends
Authors: Schendel DE, Bresnahan M, Carter KW, Francis RW, Gissler M, Gronborg TK, Gross R, Gunnes N, Hornig M, Hultman CM, Langridge A, Lauritsen MB, Leonard H, Parner ET, Reichenberg A, Sandin S, Sourander A, Stoltenberg C, Suominen A, Suren P, Susser E
Publisher: SPRINGER/PLENUM PUBLISHERS
Publication year: 2013
Journal: Journal of Autism and Developmental Disorders
Journal name in source: JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
Journal acronym: J AUTISM DEV DISORD
Number in series: 11
Volume: 43
Issue: 11
First page : 2650
Last page: 2663
Number of pages: 14
ISSN: 0162-3257
DOI: https://doi.org/10.1007/s10803-013-1815-x
The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.
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