A4 Vertaisarvioitu artikkeli konferenssijulkaisussa
Rawls’ view in context of datenherrschaft over personal patient information
Tekijät: Jani Koskinen, Olli Heimo, Kai Kimppa
Toimittaja: Elizabeth A. Buchanan, Paul B. de Laat, Herman T. Tavani and Jenny Klucarich
Konferenssin vakiintunut nimi: Ambiguous Technologies: Philosophical Issues, Practical Solutions, Human Nature Proceedings of the 2013 Computer Ethics, Philosophical Enquiry (CEPE) Conference
Julkaisuvuosi: 2013
Journal: Computer Ethics - Philosophical Enquiry (CEPE) proceedings
Sarjan nimi: CEPE, Computer Ethics, Philosophical Enquiry
Numero sarjassa: 10
Aloitussivu: 184
Lopetussivu: 194
Sivujen määrä: 11
The ownership of patient information is a topic which has great ethical impact on healthcare and especially in the life of individuals. Current legislation in many countries is not clear and thus there is different ways to interpret ownership. Therefore the use of patient information is based on poor justification and is promoting the needs of healthcare organisations and professionals on the cost of the citizens. In this paper five stakeholders, namely the state, the healthcare professional, the healthcare provider organisation (public or private), the provider of the information system and the citizen as possible owners are evaluated as the possible owner through Rawls’s Theory of justice. Three arguments which are derived from Rawls, based on the Veil of Ignorance, Two Principles of Justice and two aspects of self-respects, all point towards the conclusion that only the citizen is a justified owner of their patient information. Thus, the ownership in a sense of datenherrschaft (mastery over information) should be given to citizens with some specific restrictions in cases where the public authorities’ lack of information could be endangering other citizens’ lives and basic liberties.