A4 Refereed article in a conference publication

Rawls’ view in context of datenherrschaft over personal patient information




AuthorsJani Koskinen, Olli Heimo, Kai Kimppa

EditorsElizabeth A. Buchanan, Paul B. de Laat, Herman T. Tavani and Jenny Klucarich

Conference nameAmbiguous Technologies: Philosophical Issues, Practical Solutions, Human Nature Proceedings of the 2013 Computer Ethics, Philosophical Enquiry (CEPE) Conference

Publication year2013

JournalComputer Ethics - Philosophical Enquiry (CEPE) proceedings

Series titleCEPE, Computer Ethics, Philosophical Enquiry

Number in series10

First page 184

Last page194

Number of pages11


Abstract

The ownership of patient information is a topic which has great ethical impact on healthcare and especially in the life of individuals. Current legislation in many countries is not clear and thus there is different ways to interpret ownership. Therefore the use of patient information is based on poor justification and is promoting the needs of healthcare organisations and professionals on the cost of the citizens. In this paper five stakeholders, namely the state, the healthcare professional, the healthcare provider organisation (public or private), the provider of the information system and the citizen as possible owners are evaluated as the possible owner through Rawls’s Theory of justice. Three arguments which are derived from Rawls, based on the Veil of Ignorance, Two Principles of Justice and two aspects of self-respects, all point towards the conclusion that only the citizen is a justified owner of their patient information. Thus, the ownership in a sense of datenherrschaft (mastery over information) should be given to citizens with some specific restrictions in cases where the public authorities’ lack of information could be endangering other citizens’ lives and basic liberties.



Last updated on 2024-26-11 at 11:28