B1 Non-refereed article in a scientific journal

Community-based health care providers as research participant recruitment gatekeepers: ethical and legal issues in a real-world case example




AuthorsCeledonia Karen L., Valenti Michael W., Corrales Compagnucci Marcelo, Lowery Wilson Michael

PublisherSAGE Publications Ltd

Publication year2020

JournalResearch ethics review

Journal name in sourceResearch Ethics

eISSN2047-6094

DOIhttps://doi.org/10.1177/1747016120980560

Self-archived copy’s web addresshttps://research.utu.fi/converis/portal/Publication/51358389


Abstract

Community-based mental health care providers (CBMHCPs) are increasingly contacted by external researchers for research study recruitment. Unfortunately, many do not possess the resources or personnel with the skills required to successfully evaluate research proposals for risks. Providing access to clients and client health information can result in harmful personal and legal consequences if the proper safeguards do not exist. This article discusses the legal requirements and practical implications for CBMHCPs when acting as gatekeepers. A case study from a large CBMHCP is presented as an illustration of steps that can be taken to protect clients and avoid risk. Additional recommendations for establishing protective safeguards and research evaluation protocols are discussed.


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