A2 Refereed review article in a scientific journal
Development of cancer support services for patients and their close ones from the Cancer Society of Finland's perspective
Authors: Tiirola Heli, Poutanen Veli-Matti, Vornanen Riitta, Pylkkänen Liisa
Publisher: TAYLOR & FRANCIS LTD
Publication year: 2021
Journal: International Journal of Qualitative Studies on Health and Well-being
Journal name in source: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING
Journal acronym: INT J QUAL STUD HEAL
Article number: ARTN 1915737
Volume: 16
Issue: 1
Number of pages: 12
ISSN: 1748-2623
eISSN: 1748-2631
DOI: https://doi.org/10.1080/17482631.2021.1915737
Web address : https://www.tandfonline.com/doi/full/10.1080/17482631.2021.1915737
Self-archived copy’s web address: https://research.utu.fi/converis/portal/Publication/56622516
Purpose: This study examined what support cancer patients and their close ones need and how this support should be organized when developing cancer care pathways. The study focused on the opinions of professionals of the Cancer Society of Finland (CSF), who play a central role in presenting the third sector's perspective on care pathways.Method: Six semi-structured group interviews were carried out with counselling nurses (n = 12) and managers (n = 9) of the CSF during summer 2017. The results were analysed using content analysis.Results: Both patients and their close ones need more information, psychosocial support and financial counselling after diagnosis, during rehabilitation and follow-up, at relapse and during the palliative care phase; additionally, close ones require support after the patient's death. Participants emphasized close collaboration between public healthcare and the CSF to meet the needs of patients and their close ones.Conclusion: Psychosocial support can-and should-be provided as part of the care pathway. This support can be provided by organizations in the third sector, such as the CSF, which have resources in this area.
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