A1 Refereed original research article in a scientific journal
Formal support for informal caregivers to older persons with dementia through the course of the disease: an exploratory, cross-sectional study
Authors: Lethin C, Leino-Kilpi H, Roe B, Soto MM, Saks K, Stephan A, Zwakhalen S, Zabalegui A, Karlsson S
Publisher: BIOMED CENTRAL LTD
Publication year: 2016
Journal: BMC Geriatrics
Journal name in source: BMC GERIATRICS
Journal acronym: BMC GERIATR
Article number: ARTN 32
Volume: 16
Number of pages: 15
ISSN: 1471-2318
DOI: https://doi.org/10.1186/s12877-016-0210-9
Conclusions: Counselling, caregiver support, and education were highly available in European countries from diagnosis to the intermediate stage of the dementia disease, decreasing in the late/end of life stages but were rarely utilized. Countries with care systems based on national guidelines for dementia care seem to be more aware of the importance of professionals specialized in dementia care when providing support to informal caregivers. Mapping the systems of support for informal caregivers of PwD is a valuable tool for evaluating existing systems, internationally, nationally and locally for policy making.