A1 Vertaisarvioitu alkuperäisartikkeli tieteellisessä lehdessä
Perceptions of patient education during hospital visit described by school-age children with a chronic illness and their parents
Tekijät: Kelo M, Eriksson E, Eriksson I
Kustantaja: WILEY-BLACKWELL
Kustannuspaikka: HOBOKEN; 111 RIVER ST, HOBOKEN 07030-5774, NJ USA
Julkaisuvuosi: 2013
Journal: Scandinavian Journal of Caring Sciences
Tietokannassa oleva lehden nimi: Scandinavian Journal of Caring Sciences
Lehden akronyymi: Scand.J.Caring Sci.
Numero sarjassa: 4
Vuosikerta: 27
Numero: 4
Aloitussivu: 894
Lopetussivu: 904
Sivujen määrä: 11
ISSN: 0283-9318
DOI: https://doi.org/10.1111/scs.12001
Tiivistelmä
BackgroundFamilies having a child with a chronic disease face changes in their everyday lives, and the whole family is involved in patient education. Nurses bear a great responsibility for patient education, but their school-age patients' and their parents' perceptions of patient education have only been studied to a limited extent. AimThe current study aimed to explore the elements of significant patient education events during a hospital visit described by school-age children with a chronic illness and their parents. MethodThe design was qualitative and descriptive. A total of nineteen Finnish parents and their 12 children aged 5-12, suffering from chronic diseases, were interviewed using a critical incident technique. The data were analysed by deductive content analysis. FindingsThe descriptions of patient education comprised cases with parents' shock at the outset of the patient education sessions and cases with the outcome of these sessions, including an experience of empowerment or lack of it. The patient education practices were examined by determining nursing, didactic and interpersonal competences. Nursing competence involved illustrations of knowledge and the ability to care for children and families as well as knowledge of the disease and its management. Didactic competence comprised practical examples of knowledge of teaching and the ability to implement the education process. Interpersonal competence manifested itself in the ability to have a dialogue. ConclusionThe findings show the importance of comprehensive patient education competence required of nurses giving education to families having children with chronic illnesses. This knowledge can be applied to promote nurses' professional training and to develop patient education.
BackgroundFamilies having a child with a chronic disease face changes in their everyday lives, and the whole family is involved in patient education. Nurses bear a great responsibility for patient education, but their school-age patients' and their parents' perceptions of patient education have only been studied to a limited extent. AimThe current study aimed to explore the elements of significant patient education events during a hospital visit described by school-age children with a chronic illness and their parents. MethodThe design was qualitative and descriptive. A total of nineteen Finnish parents and their 12 children aged 5-12, suffering from chronic diseases, were interviewed using a critical incident technique. The data were analysed by deductive content analysis. FindingsThe descriptions of patient education comprised cases with parents' shock at the outset of the patient education sessions and cases with the outcome of these sessions, including an experience of empowerment or lack of it. The patient education practices were examined by determining nursing, didactic and interpersonal competences. Nursing competence involved illustrations of knowledge and the ability to care for children and families as well as knowledge of the disease and its management. Didactic competence comprised practical examples of knowledge of teaching and the ability to implement the education process. Interpersonal competence manifested itself in the ability to have a dialogue. ConclusionThe findings show the importance of comprehensive patient education competence required of nurses giving education to families having children with chronic illnesses. This knowledge can be applied to promote nurses' professional training and to develop patient education.
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