A3 Refereed book chapter or chapter in a compilation book
Biobanks: Balancing Benefits and Risks
Authors: Ewa Bartnik, Eero Vuorio
Editors: Bagheri Alireza, Moreno Jonathan D., Semplici Stefano
Publisher: SPRINGER INTERNATIONAL PUBLISHING AG, GEWERBESTRASSE 11, CHAM, CH-6330, SWITZERLAND
Publication year: 2016
Book title : Global Bioethics: The Impact of the UNESCO International Bioethics Committee
Journal acronym: ADVANC GLOB BIOETH
Series title: Advancing Global Bioethics
Volume: 5
First page : 81
Last page: 89
Number of pages: 9
ISBN: 978-3-319-22649-1
eISBN: 978-3-319-22650-7
ISSN: 2212-652X
DOI: https://doi.org/10.1007/978-3-319-22650-7_8
Abstract
Since its creation in 1993, the International Bioethics Committee (IBC) of UNESCO has been actively involved both in analysing bioethical problems and in proposing related guidelines. Currently IBC is focusing on a number of bioethical problems in the rapidly changing world of biomedical research. The purpose of this chapter is to review the progress in biobanking of human specimens and their high-throughput analysis into data. Biobanks are becoming repositories of human genetic material and data and thereby play an important role in the advancement of human health and in research and development in life sciences and biomedicine. More importantly, systematic collection of human samples and data provides the basis for better stratification of diseases, for development of personalized medicine and for development of health policies throughout the world. However, availability of biobanked samples and derived genetic data may also create problems concerning informed consent, incidental (unsolicited) findings and privacy, which have also been discussed by IBC.
Since its creation in 1993, the International Bioethics Committee (IBC) of UNESCO has been actively involved both in analysing bioethical problems and in proposing related guidelines. Currently IBC is focusing on a number of bioethical problems in the rapidly changing world of biomedical research. The purpose of this chapter is to review the progress in biobanking of human specimens and their high-throughput analysis into data. Biobanks are becoming repositories of human genetic material and data and thereby play an important role in the advancement of human health and in research and development in life sciences and biomedicine. More importantly, systematic collection of human samples and data provides the basis for better stratification of diseases, for development of personalized medicine and for development of health policies throughout the world. However, availability of biobanked samples and derived genetic data may also create problems concerning informed consent, incidental (unsolicited) findings and privacy, which have also been discussed by IBC.
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