Refereed review article in scientific journal (A2)
Ethical challenges in autism genomics: Recommendations for researchers
List of Authors: Natri Heini M., Chapman Carolyn R., Heraty Síofra, Dwyer Patrick, Walker Nick, Kapp Steven K., Dron Heather A., Martinez-Agosto Julian A., Mikkola Lea, Doherty Mary
Publication year: 2023
Journal: European Journal of Medical Genetics
Journal acronym: EJMG
Article number: 104810
Volume number: 66
Issue number: 9
eISSN: 1878-0849
DOI: http://dx.doi.org/10.1016/j.ejmg.2023.104810
URL: https://www.sciencedirect.com/science/article/pii/S1769721223001167
Equitable and just genetic research and clinical translation require an examination of the ethical questions pertaining to vulnerable and marginalized communities. Autism research and advocate communities have expressed concerns over current practices of genetics research, urging the field to shift towards paradigms and practices that ensure benefits and avoid harm to research participants and the wider autistic community. Building upon a framework of bioethical principles, we provide the background for the concerns and present recommendations for ethically sustainable and justice-oriented genetic and genomic autism research. With the primary goal of enhancing the health, well-being, and autonomy of autistic persons, we make recommendations to guide priority setting, responsible research conduct, and informed consent practices. Further, we discuss the ethical challenges particularly pertaining to research involving highly vulnerable individuals and groups, such as those with impaired cognitive or communication ability. Finally, we consider the clinical translation of autism genetics studies, including the use of genetic testing. These guidelines, developed by an interdisciplinary working group comprising autistic and non-autistic individuals, will aid in leveraging the potential of genetics research to enhance the quality of life of autistic individuals and are widely applicable across stigmatized traits and vulnerable communities.