Refereed journal article or data article (A1)

Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy




List of AuthorsKårstad Silja Berg, Bjørseth Åse, Lindstedt Johanna, Brenne Anna Synnöve, Steihaug Helene, Elvrum Ann-Kristin Gunnes

PublisherMDPI

PlaceBasel

Publication year2023

JournalJournal of Clinical Medicine

Journal name in sourceJournal of clinical medicine

Journal acronymJ Clin Med

Volume number12

Issue number1

ISSN2077-0383

eISSN2077-0383

DOIhttp://dx.doi.org/10.3390/jcm12010277

URLhttps://doi.org/10.3390/jcm12010277

Self-archived copy’s web addresshttps://research.utu.fi/converis/portal/detail/Publication/178534539


Abstract
The aim of this study is to describe parental coping, representations, and interactions during the time of inclusion in the Small Step early intervention program for infants at high risk of cerebral palsy (CP) in Norway (ClinicalTrials.gov: NCT03264339). Altogether, 11 infants (mean age 4.8 months, SD: 1.5) and their parents (mothers: n = 10, fathers: n = 9) were included. Parental coping was assessed using the Parenting Stress Index-Short Form (PSI-SF) and the Hospital Anxiety and Depression Scale (HADS). Parental representations and parent-infant interactions were assessed using the Working Model of the Child Interview (WMCI) and the Parent-Child Early Relational Assessment (PCERA). Parents' PSI-SF and HADS scores were within normal range; however, 26.7% showed symptoms of stress, 52.6% showed symptoms of anxiety, and 31.6% showed symptoms of depression above the cut-off. WMCI results indicate that 73.7% of the parents had balanced representations. For PCERA, the subscale Dyadic Mutuality and Reciprocity was of concern, while two other subscales were in areas of strength and three subscales in some concern areas. There were no differences between mothers and fathers. Most of the parents had balanced representations, some had mental or stress symptoms and many were struggling with aspects of the parent-infant interaction. This knowledge could be useful when developing more family-centered interventions.

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Last updated on 2023-15-06 at 16:28