A1 Refereed original research article in a scientific journal
Care and Service at Home for Persons With Dementia in Europe
Authors: Bökberg C, Ahlström G, Leino-Kilpi H, Soto-Martin ME, Cabrera E, Verbeek H, Saks K, Stephan A, Sutcliffe C, Karlsson S
Publication year: 2015
Journal: Journal of Nursing Scholarship
Volume: 47
Issue: 5
First page : 407
Last page: 416
Number of pages: 11
ISSN: 1527-6546
DOI: https://doi.org/10.1111/jnu.12158
Purpose
To describe available and utilized formal care and service at home for persons with dementia, from diagnosis to end-of-life stage, in eight European countries.
Design
A descriptive cross-country design concerning eight European countries as a part of the European research project RightTimePlaceCare.
Methods
The research team in each country used a mapping system to collect country-specific information concerning dementia care and service system. The mapping system consists of 50 types of care and service activities. Sixteen of the 50 predefined activities concerning care and service at home were selected for this study and subdivided into three categories, following the stages of dementia.
Findings
Availability was reported to be higher than utilization, and the findings indicated more similarities than differences among the eight countries involved. Even though there were several available activities of “basic care and services” and “healthcare interventions,” they were utilized by few in most countries. Furthermore, “specialized dementia care and services” were sparsely available and even more sparsely utilized in the participating countries.
Conclusions
The findings indicated that persons with dementia in Europe received formal care and service on a general, basic level but seldom adjusted to their specific needs.